Open Science Initiative for Neuromuscular Disease Research
MOVR is creating open source initiatives in software and eventually science — building transparent, community-driven tools that accelerate research and benefit everyone.
Open source tools and collaborative infrastructure for the research community
Clinical data integration libraries, data processing pipelines, and research tools built transparently with the community.
Transparent research processes, shared datasets, and collaborative frameworks that benefit the entire research ecosystem.
Bringing together researchers, developers, patients, and institutions under unified governance and shared goals.
We're in the early stages — validating MOVR 2.0, developing open source tools, and establishing the foundations for transparent, community-driven neuromuscular disease research.
12 years of proven excellence in neuromuscular disease research
MOVR is evolving from a traditional registry into an open science initiative — creating transparent, community-driven software tools that accelerate neuromuscular disease research.
We're building the infrastructure for modern research: FHIR-based EMR integration, automated data processing, and collaborative frameworks that bring researchers, patients, and institutions together.
Join us in building the future of neuromuscular disease research
Join our Google Summer of Code program and help build open source tools for neuromuscular disease research.
Featured: MOVR DataHub Analytics — Python library for research data access.
GSoC ProgramBe part of MOVR 2.0 Pilot — help co-create the next generation data platform.
Limited enrollment for DMD, SMA, and LGMD families.
Join PilotWhether you're a researcher, developer, clinician, or someone passionate about advancing neuromuscular disease research.